LinLins continuing journey

Today
finally the nurse called me back, at 7:00AM. 
 
I explained (again) that I would like the Dr to return my call.  Of course, I then had to explain what the call was about.(again)
 
I told her that I needed a blood test for Chronic Pulmonary Histoplasmosis and the nurse replied, "I don’t not know nothing bout that".  Where did you get her education ?
 
Finally I was only able to get an appointment, on March 25.  
 
In the meantime, I am in touch with the Rare Disease Councel, The Health and Human Services of North Carolina, and tomorrow I expect some answer from the CDC.
 
I can’t give up, this is what I need.  The nodules have grown a lot and are now ecscapulated with some fluid in the shell. What could happen if the shell rips or cracks, will the fluid flood my lung and kill me?  Quite probably.
 
Why is it so hard to get a simple blood test?  And why does a office worker think she is the final authority when it comes to business that should be conducted between a patient and a Dr.
 
I am fighting mad now, and I will get this test one way or another. I also realize that there are a lot of false negatives with this test.
 
Treatmen is vital and consists of an oral medicine for a period of about 6 months.  But the way things are going, I may expire before I get the help that i need.
 
Fighting for what I need, and I won’t give up.  
 
Any suggestions would be greatly appreciated.
 
LinLin     
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About albanylinlin5

Love reading with my Kindle 2, Rode the big bikes all my life, but can't ride anymore. Love spending time with a special person who can enjoy b eing quiet together or out and about having fun. Love music, Susan Boyle, early Charlotte Church and more
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